NeuroGeneDx · neurogenedx.org · Last updated 3 August 2026
The short version: this site sets no cookies and runs no analytics or trackers. Everything the page loads is served from our own domain. The only personal data that ever leaves your browser is what you type into the waitlist form — and we never ask for, or receive, your actual DNA data through this site.
NeuroGeneDx ("we") is the data controller for this website. You can reach us about anything privacy-related at neurogenedx@gmail.com.
If you join the waitlist, we store what you submit: your name, email address, the reason for your interest (optional), and whether you already have raw DNA data (a yes/no tick — never the data itself). If you don't submit the form, we collect nothing about you.
We use these details for one purpose: contacting you about early access and our launch. The lawful basis is your consent — and because the reason you give may say something about your health (for example, that a medication isn't working for you), we treat your answers as health-related information and rely on your explicit consent to store them. Only share what you're comfortable with; the reason field is optional. You can withdraw consent at any time with a single email, and we'll delete your entry.
Waitlist entries are saved to a spreadsheet in our own Google account (Google acts as our storage processor). They are not shared with, or sold to, anyone else.
Until our early-access launch communications are done, or until you ask to be removed — whichever comes first.
Headlines in "Latest in genetics" are fetched by our server from public science publications and passed to the page. Your browser never contacts those publishers, and nothing about you is sent to them.
Under UK GDPR you can ask us to access, correct, delete or export the details we hold about you, restrict how we use them, or withdraw consent entirely — email neurogenedx@gmail.com. If you're unhappy with our answer, you can complain to the Information Commissioner's Office at ico.org.uk.
NeuroGeneDx provides genetic insights to support conversations with your doctor. It is not a diagnosis and does not replace professional medical advice.